Skip to main content

Chapter 31

This week marks my 31st birthday. 

I have mixed feelings - I feel as though my recovery has been slow and that I haven't felt much improvement, but I have felt more positive than I have in the six months since my last operation - as though I am due and deserve to celebrate. 

As we ease out of lockdown, the options to celebrate are limited, but if I'm honest with myself I don't yet feel ready for the big wide world - aside from my boys, I feel like I have no news or change to report and have felt stuck on pause for weeks upon weeks. I haven't drank alcohol for a long time and wouldn't feel ready to 'party' as such -  I'd like to stay within the cocoon I've built around myself until I'm healed enough to face everyone. 

We plan to spend the next three days as a family of four or seeing immediate family on both sides;  celebrating and creating memories, hopefully with some sunshine (!!) 

I'm looking forward to Covid restrictions easing further, with my next reiki session booked for as soon as next week, along with nail appointments and a trip to Chessington World of Adventures with the boys to enjoy as a family. 

Restrictions lifting just as I am beginning to feel positive feels almost deliberate and the start of a new chapter. Chapter 31. (cringe) 

I'm a huge believer in creating positivity for a positive outcome - Rare Disease UK recently shared my story on their website (which you can read here: Lauren’s Story - Rare Disease UK ) and I'm hoping that will raise awareness for other people, children and parents going through what I have been through - that one day this experience, blog and story won't be about me anymore - but that my words will help someone;  help them through the difficult journey that a rare disease or a major operation is. 

I am also taking part in a naked photoshoot in a couple of weeks (the evidence of which perhaps shouldn't be shared here...) to promote post surgery body positivity and confidence. I'm aware it's incredibly daring; half of the shoot will be outside in a public place (hot water bottles at the ready!) but isn't that what life is about? I haven't been living for so long, feeling as though my wings have been clipped and now is the time to live life to the full. 
Things have been tough and although my darkest days are almost pitch black - I'm feeling more ready than ever to push life's limits. 

So this week not only will I be celebrating my birthday, I'll be celebrating being alive. 

Comments

Popular posts from this blog

Sacrococcygeal Teratoma (SCT)

A Sacrococcygeal Teratoma (SCT) is a rare type of tumour known as a teratoma that develops at the base of the coccyx (tailbone).  S acrococcygeal teratoma's are benign 75% of the time, malignant and life threatening 12% of the time and the remainder are considered 'immature teratoma's' that share benign and malignant features.  Benign  sacrococcygeal teratoma's are more likely to develop in younger children who are less than five months old and older children are more likely to develop malignant  sacrococcygeal teratoma's. S acrococcygeal teratoma's are usually found in stages (depending on their relative extent inside or outside the body);  - Type 1 - Are external (outside the body) tumours and are attached to the tailbone.  - Type 2 - Have both internal (inside the body) and external parts.  - Type 3 - Can be seen from the outside but most of the tumour is inside the abdomen.  - Type 4 - The most serious: can't be seen from the outside - they ar...

Sunday 18th October 2020

Today, I am going out for lunch.  A nice lunch, Sunday lunch, at a decent gastro pub in Hullbridge - not too far away from where we live.  I'm determined to dress up; put on some make up, wear a pair of heels that I bought months ago and never wore; due to a certain global pandemic, do my hair and dress like a millionaire.  A millionaire that only got released from hospital two days beforehand.  I have just had a serious major operation - my second in fifteen months. Due to said global pandemic, I was isolated in my hospital room for ten days. I was released into a new season and new government rules regarding social distancing, safety curfews and laws.  I was released with an impressive set of stitches, a great deal of pain, no coccyx and a new diet.  I was released to great support and overwhelming messages. Talk about a whirlwind of emotions!  I have new found knowledge since my stay in hospital and new found gratitude to the simplest of things - yo...

Blazing tarts

I had another baking urge the other day.  The first time I ever cooked for my husband, I made him a steak pie and it is one of those memories that gets bought up at random times; whilst watching TV, when in the car or sitting in the bath ' Boo, do remember that pie?!'   My husband has called me 'Boo' since the first year we were together - I'm not sure why, but it just stuck. Anyway, as he's had to step up as nurse for the third time running, I thought I'd treat him.  I made a steak pie filled with big chunks of beef., carrots and delicious herbs. I topped it with buttered pastry and it sunk quite tragically when I took it out of the oven but still, tasted delicious so it was a success! With pastry leftover, I decided to make some jam tarts for the twins - I mixed fresh berries with jam and without a steady hand to cut out pastry shapes to top them, I found a monkey shaped cutter and used that to decorate them. They looked incredibly random but were very tas...