Skip to main content

BIG news

So this week I saw my surgeon, to get my MRI results - and wait for it..... 

I GOT THE ALL CLEAR!!!!! 

The cavity where my coccyx and the tumour's have once stood, is looking 'the best it's ever been' apparently and aside from the expected scar tissue and inflammation from the three operations, I shouldn't need to have further surgery or any intrusive examinations. 

There is still a small open wound from the last operation which should heal in time and my infection levels are still high but have come down hugely since Christmas. 

I'm still getting my head around it all - in shock almost - this has been my life for eighteen months and it will be strange not to work my weeks around hospital  and nurse appointments - I feel almost alone in the big wide world, I've had so many health professionals holding my hand over the last two years that I'm second guessing myself - waiting for someone to say they have made some sort of mistake - that something else has been found after all. 

I'm so very proud of my body and all that it has overcome since every traumatic operation that has happened in such a small space of time. The fourteen MRI scans, the endless appointments and blood tests and more importantly I'm proud of myself - for not falling apart and for staying strong throughout every operation, appointment and recovery process. 

I've still got a way to go - I have many pelvic appointments booked in the near future to wake up my nerves after three rounds of surgery, I'll still need a lot of rest and will need to continue to take it easy (shan't be getting on a bike or a mechanical bull anytime soon!) and it will take me a long time to be pain free and get to where I was; I'll never be the same person I was before the first operation - but finally - I'm healing:  I'm here, I'm on the right track, I'm alive and I'm getting my life back. 

Comments

Post a Comment

Popular posts from this blog

Sacrococcygeal Teratoma (SCT)

A Sacrococcygeal Teratoma (SCT) is a rare type of tumour known as a teratoma that develops at the base of the coccyx (tailbone).  S acrococcygeal teratoma's are benign 75% of the time, malignant and life threatening 12% of the time and the remainder are considered 'immature teratoma's' that share benign and malignant features.  Benign  sacrococcygeal teratoma's are more likely to develop in younger children who are less than five months old and older children are more likely to develop malignant  sacrococcygeal teratoma's. S acrococcygeal teratoma's are usually found in stages (depending on their relative extent inside or outside the body);  - Type 1 - Are external (outside the body) tumours and are attached to the tailbone.  - Type 2 - Have both internal (inside the body) and external parts.  - Type 3 - Can be seen from the outside but most of the tumour is inside the abdomen.  - Type 4 - The most serious: can't be seen from the outside - they are insid
3 comments
Read more

Sunday 18th October 2020

Today, I am going out for lunch.  A nice lunch, Sunday lunch, at a decent gastro pub in Hullbridge - not too far away from where we live.  I'm determined to dress up; put on some make up, wear a pair of heels that I bought months ago and never wore; due to a certain global pandemic, do my hair and dress like a millionaire.  A millionaire that only got released from hospital two days beforehand.  I have just had a serious major operation - my second in fifteen months. Due to said global pandemic, I was isolated in my hospital room for ten days. I was released into a new season and new government rules regarding social distancing, safety curfews and laws.  I was released with an impressive set of stitches, a great deal of pain, no coccyx and a new diet.  I was released to great support and overwhelming messages. Talk about a whirlwind of emotions!  I have new found knowledge since my stay in hospital and new found gratitude to the simplest of things - you have no idea how much you mi
3 comments
Read more

Blazing tarts

I had another baking urge the other day.  The first time I ever cooked for my husband, I made him a steak pie and it is one of those memories that gets bought up at random times; whilst watching TV, when in the car or sitting in the bath ' Boo, do remember that pie?!'   My husband has called me 'Boo' since the first year we were together - I'm not sure why, but it just stuck. Anyway, as he's had to step up as nurse for the third time running, I thought I'd treat him.  I made a steak pie filled with big chunks of beef., carrots and delicious herbs. I topped it with buttered pastry and it sunk quite tragically when I took it out of the oven but still, tasted delicious so it was a success! With pastry leftover, I decided to make some jam tarts for the twins - I mixed fresh berries with jam and without a steady hand to cut out pastry shapes to top them, I found a monkey shaped cutter and used that to decorate them. They looked incredibly random but were very tas
2 comments
Read more