Skip to main content

Sacrococcygeal Teratoma (SCT)

A Sacrococcygeal Teratoma (SCT) is a rare type of tumour known as a teratoma that develops at the base of the coccyx (tailbone). 

Sacrococcygeal teratoma's are benign 75% of the time, malignant and life threatening 12% of the time and the remainder are considered 'immature teratoma's' that share benign and malignant features. 

Benign sacrococcygeal teratoma's are more likely to develop in younger children who are less than five months old and older children are more likely to develop malignant sacrococcygeal teratoma's.

Sacrococcygeal teratoma's are usually found in stages (depending on their relative extent inside or outside the body); 

- Type 1 - Are external (outside the body) tumours and are attached to the tailbone. 

- Type 2 - Have both internal (inside the body) and external parts. 

- Type 3 - Can be seen from the outside but most of the tumour is inside the abdomen. 

- Type 4 - The most serious: can't be seen from the outside - they are inside the body at tailbone level. 

sacrococcygeal teratoma only occurs in about one in 35,000 births and is more common in female than male babies. They are exceedingly rare in adults. 
The tumour is usually diagnosed with an ultrasound exam. 

The cause of these tumours is unknown. 

Comments

  1. Crazy to think that so few people have this particular tumour, I am so glad it was finally diagnosed!! Fingers crossed there are no further operations to come, and that you can start to wave goodbye to that sacrococcygeal teratoma!! Xxx

    ReplyDelete
  2. You really are special :) xx

    ReplyDelete

Post a Comment

Popular posts from this blog

Surgery preparation

 As I write this, I have exactly a week until my fifth operation.  With COVID numbers apparently high (according to the media) along with friends and family around me catching it and dropping like flies over Christmas; I have decided to wrap myself up in bubble wrap (not literally) and keep myself protected from the outside world so that I do not jeopardise my opportunity to step into the hospital and have the surgery that will hopefully allow me to be pain free for a year and provide me the closure I need, from what has been a traumatising 30 months.  Christmas was as magical and warm as expected with two excited four year olds - however, incredibly tiring due to said four year olds waking up at 4.30am ready to find out if Father Christmas has been (always 'Father Christmas' never 'Santa' - I'm British after all) and to begin the festivities.  So there we were - managing to delay until 5am, but half asleep putting together every single toy one after the other, like...

Marching on in March

 I think with a major operation, just because it is over, doesn't mean the struggle ends there. It isn't like having a tooth out for example - the hardest part of the journey is the recovery, the time in between operations, building yourself up to then get knocked back down; stripped of your energy and shine.  Its been a really hard week. The pain doesn't feel as though it is getting any easier, sometimes it feels as though it is getting worse and I've spent more night's lying awake in pain, than I have in a blissful deep sleep, healing my broken body.  I spoke to my surgeon this week and expressed my concern over the pain I am still in, five months after my last operation, he said that due to the fact my situation is so unique and the operation's were so complex, he would need to refer me to a pain specialist consultant. My surgeon confirmed that things aren't going as they should with my recovery - in regards to the pain and functionality - for example, my...

One day at a time...